Posts

The Big Sleep

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  Expect me to start with an idiotically silly meme each time! That's how I roll! As much of a pain in the rumpus mast cell is being able to laugh helps. You know I've had mastocytosis so many years now that I have how I handle it down to a science now. I hope talking about it helps someone else deal like a boss. In my home my master bedroom suite is set up in such a way as it is my refuge when it hits. The windows are hermetically sealed. The air conditioning has a HEPA filter. I have a secondary HEPA filter I turn on sometimes. The room has a sitting area, a large dressing room and the master bath. I hole up there when I'm sick and have no need to leave except for getting something to eat.  The doctors here don't quite know what to do with me because none of them have ever treated any of the mast cell disorders. Head doctor at the clinic is my doctor, and she's always been open to ordering the things that have helped that aren't common in Costa Rica. She's...

Thanksgiving - Same as it Ever is!

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 This year different restaurant and same struggle. The difference is I have no earthly idea what it was I ingested that's still making me sick as hell... I guess it's back to homemade, no more celebrating Turkey Day elsewhere at others homes or at restaurants. Going back to bed but this time I have Mr. Asthma tagging along for shits and giggles.  

The Years of Living Too Dangerously

\\  It started simply. I was born, I was born in the shadow of the main Exxon refinery in South Louisiana and was diagnosed with severe asthma. I don't remember a time when I wasn't getting inhalers and drugs. Eventually I outgrew it when I reached my teens. Just about the same time I started smoking marijuana at quantities more appropriate for a Rastafarian or your average Grateful Dead fan. How I made it through my studies I will never know, made pretty decent grades back then too. Which started a blissful 20 year stretch with no asthma. I thought I'd beaten the final boss. Won the gold ring. Got boinked on the head by the lucky flying pickle of fate. Right up until my last baby was a year old. Mr. Asthma came roaring back suddenly. I didn't get it, it seemed beyond understanding. I didn't smoke. I hadn't fooled with illicit drugs or the Devil's Lettuce in most of those years. Heck, I didn't drink more than the occasional glass of wine, or eggnog durin...